13 week mark

We have now entered our 13th week in the NICU. It seems like an eternity in some respects, while it seems like yesterday that he was born. Non the less, we are just thankful our little man is braving it all so well.

As for Elias, he is having a fitful morning. He has been a bit fussy so far. Last night he was very comfortable and sleeping through our visit. The IV access in his head stopped working earlier. They originally wanted to stop the fentanyl and switch over to morphine, which they can give through his G-tube. Since they haven't been able to ween the fentanyl more they still need to continue with it, so another IV was needed. It took several nurses to finally get one that worked. That of course did not make Elias very happy this morning. The goal for his feeds today is to get it bumped to full volume for him, 22 mls. Everything with that seems to continue on a good track, so we are keeping our fingers crossed.

We have requested another Family Meeting for the end of next week. We just want to be able to go over the new plan and try to figure out when we can get our boy home. We are hoping today or tomorrow Elias will be feeling well enough to get a few more photos and maybe some video for everyone to see. That is all for now, we will see what the rest of today holds in store for us.