Calling All Questions!!

Elias is still doing well and on the Si Pap. There was a little concern that he may get tired since he was breathing on his own, but he was really taken a liking to it. His blood gasses and vitals still are beautiful and you can tell he is feeling better now. They are beginning to ween the morphine now that he has turned the corner with the fentanyl withdrawal. Dr. Stuart came by and looked at the G-tube sight and said that he was not concerned with all the leaking, that it would be fine. Coming from him, we are happy with that. As we mentioned yesterday he wants to do another dilation and change the trach tube next week. He is leaving this in longer than normal mainly because Elias is so small and they already are using the smallest tube. He warned us on the onset he would drag his feet on the initial change, so this is not too much of a surprise.

Thursday is our family meeting, at 8:00 am. As with last time we are preparing a list of questions to ask the medical teams. We would like your input as well. Please call us, email, or leave a comment if you can think of anything. As we said last time, there are so many things going through our heads that we might overlook something that could be worth looking in to. Even if it is something you would like to know yourself about Elias, we would be happy to ask. We certainly appreciate your input and suggestions, at anytime, but even more so now. Thank you all in advance. We can finally see the finish line, it is still pretty far off in the distance, but at least the road looks to be straight and narrow.