Family Meeting Postponed

It will be next week sometime, probably next Tuesday. While it means having to wait another week for some solid answers, it also gives us another week in the NICU rather than a transitional hospital. The medical team also wants one of the two nurses that have had him the most to be present. It also allows the head of the NICU to potentially attend as well, he was away this week. He has been following Elias' case and has been particularly helpful. So as usual everything happens for a reason.

It is probably very advantageous for the medical team since there is something going on with Elias that they are not quite able to put their finger on. We are still waiting for the blood culture from Saturday to come back. They also did a urinalysis today. The G-tube site was looking a tiny bit better, but nothing to get excited about. There was some leakage again today that is more significant than what we have been seeing. Bottom line is this thing is really becoming an inconsistent nightmare.

We have started the search for private duty nursing. We received a list of agencies that work with the Waiver Program. There are twenty-eight that participate in our county, so now we begin the daunting task of interviewing them and weeding them out. More tomorrow...!!