This is a radio montage that another VACTERL family had the opportunity to do for a children's hospital radiothon in Kentucky. The mother was very strong and well spoken about VACTERL. Our hats go of to her for doing this. We are very fortunate to be in a place where we have all the specialist we need for Elias all in one hospital. Many families, like this one, do not. While VACTERL is unique in that no two children diagnosed with this association are alike, the things that are constant are these children's wonderful personalities, and the parent's strong wills. It doesn't mean we do not break down or even wonder at times, "how will we ever get through this." You just look into the eyes of your child and see the hope that they have and the care-free spirit they so rightly deserve. People ask us all the time how we do it and what are we feeling? I think that listening to this mother can really give you an idea of what goes on inside of our minds. ***WARNING*** Have Tissues Ready!!
[This is audio only; No video]