Tomorrow we have a hearing impairment teacher coming through the infant and toddlers program. It was actually quite a battle to even get this initial consultation to occur, despite the state audiology department's specific request for this to begin ASAP. The ironic thing is both program departments are run by the same state agency. Isn't that the best of bureaucracy and government. The main reason they are pushing so hard is the inherent potential for hearing loss or deafness with Elias diagnosis of FA. Since there has been no official determination on his hearing abilities either way, because of testing issues, they want us to begin early intervention for the worst case scenario. We are still working with the hospital to have the level 3 hearing test completed during one of Elias surgeries in the coming months.
Admittedly, we are a bit apprehensive for the final results. We have wondered since the beginning about his hearing because of his right ear, which is not fully developed. We always anticipated diminished hearing, but lately it is appearing more and more like Elias might be deaf. There are days that we feel as though he can hear and others we are uncertain. The most convincing that he is deaf is coming behind him while one of us holds him so he does not know we are there. We have made loud noises, clapped loudly and done other activities with zero response and no startling. That is concerning and leads us to anticipate the loss of hearing. On the bright side, it certainly has not prevented him from doing many things so it is not an overwhelming concern. Tomorrow will be interesting and a little anxious, but we are positive with this intervention good things will come out of this.