Still Watching Him

While Elias had somewhat of a better day yesterday this morning is not shaping up to be the same. We are starting to think Elias caught a cold or has a mild respiratory infection. We tell this mostly from his secretions and amount of suctioning we are doing not only in the trach, but also his mouth. He did at least sleep on Saturday night, but there was much more overnight suctioning needed, so only he got some rest. The first part of last night was not so bad until about 4:30 this morning when Elias started the inconsolable crying again. Katharine had left for work shortly before (yes she had to be at work at 5 am) so needless to say we are both hurting for sleep at this moment. Elias is back to the fussing similar to that which he had going on Friday night. The difference this morning mainly being that it comes and goes in spurts rather than the constant crying. He will get to a point where I think he is going back to sleep and then a minute later he is at it again. I think it is mostly from just being very tired, but I am sure he has some discomfort going on. I have been suctioning him a lot and that never makes him happy.  We would really like to think this is something that will resolve itself without medical intervention. If it keeps up though we have already pushed the envelope a little more than we probably should and our tolerance going forward is going to have to be very low. It is simply miserable watching him feel so horrible. This is a cycle we have come to accept though, a period of good days, then really bad days, followed by up & down days and back to good.  We just wish we had the ability to make him better or at least make the good days outnumber the bad.