Update 3

Mitroffanoff complete. Elias still doing well. Just saw his blood gas results and they looked good. Moving forward with final phase. Projecting 2 more hours. After surgery he will be moved directly to ICU. Pain team has briefed us on their involvement as they as anticipating Elias will be in a fair amount of pain. Continue to pray he holds out for the next few hours. He has been getting stress dosing of steroids to help with his adrenal insufficiency and that will surely help.

He has a great team working with him. They are very respectful of Elias' complexities and have not assumed anything. They are being very careful to address all his needs because of the complex nature of his body.

Thank again for all the support. It has been a long day and there is much more to go. We appreciate all the love you all have shown Elias and our family