Urology and Kidney Follow-up

FINALLY got a plan from Urology after family relations lit another fire today. It has been 3 weeks with no communication of a plan a one week without a call after involving family relations. That is good news. The plan itself however is not good news. Elias bladder will need to be re-evaluated, but it can not be done until a few days before Christmas. There are several fears (their words) from their prospective on why the cathing is not working as it should. We prefer to call them theories. Essentially because Elias is unable to eat by mouth and his diet consist of so much liquid it is possible his bladder is just not able to control the pressures and amount of urine produced and we can not keep up no matter how frequently we catheterize him. The other is that his kidneys are unable to concentrate fluids effectively (due to the damage) effectively causing more urine to be made unnecessarily. This leads to fluid loss naturally that makes it difficult to maintain proper hydration. We do have challenges with that and have for years. Two medications are being prescribed in the hopes that they provide either relief to get us to the end of December or assists in making things function in a more expected fashion. One concern with using 1 of the medicines is that it can create issues with his trach and secretion management, cause it to plug off where he wouldn't be able to breathe (it would never get to that point, but ignored it could). So we will be using very low dosing that may not even be effective. Prayers that the medicine does the job, even if only temporarily reducing the amount of potential damage to the kidneys. Also that the further testing just before Christmas yields enough for a clear and positive plan and outcome. Thank you all for your continued support, thoughts and prayers.