tag:blogger.com,1999:blog-7131658417200450911.post592214225666144036..comments2023-06-26T09:45:08.115-04:00Comments on Elias!: Devastating NewsElias!http://www.blogger.com/profile/13907924132619625535noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7131658417200450911.post-47620561582437011522008-10-10T21:04:00.000-04:002008-10-10T21:04:00.000-04:00I have been following your blog on your little man...I have been following your blog on your little man, Elias. What an INCREDIBLY adorable little man at that. :) I have never posted but wanted to let you know that I will be thinking and praying for you guys in this difficult time. I was in tears today as I read the diagnosis that was received on Elias. My son was also tested for this as he was born with some of the VACTERL "defects". But I just wanted to let you know that I am thinking about you and wanted to send some BIG hugs.Kristinhttps://www.blogger.com/profile/10298185591595456078noreply@blogger.comtag:blogger.com,1999:blog-7131658417200450911.post-184010298542509762008-10-10T20:43:00.000-04:002008-10-10T20:43:00.000-04:00You're in my thoughts. Elias is so lucky to have ...You're in my thoughts. Elias is so lucky to have parents like you. I wish him the best.Alina Kleinhttps://www.blogger.com/profile/07499769990637055382noreply@blogger.comtag:blogger.com,1999:blog-7131658417200450911.post-90409232339174213342008-10-10T11:19:00.000-04:002008-10-10T11:19:00.000-04:00Michael and Katharine,I don't know if I'm supposed...Michael and Katharine,<BR/>I don't know if I'm supposed to be positive or not, but I'm in tears right now. Because Fanconi's was one of the things Brody was tested for too, while in the NICU. I am so so sorry. Elias does not deserve this diagnosis - and you do not deserve this devastating news. I remember when we were waiting for the genetics test results, one of our family friends told us a family who had 3 children, all of whom had Fanconi's anemia. They definitely had their share of illness, but the kids were 13, 11 and 9, and all happy and living life. I don't know if that's consolation or not. I don't know what to write. I just want to give you guys a hug. And i second Lori's request to stay part of the VN. You are all in my prayers today.Lolita Breckenridgehttps://www.blogger.com/profile/15026226011958310047noreply@blogger.comtag:blogger.com,1999:blog-7131658417200450911.post-69067989183061252482008-10-10T10:36:00.000-04:002008-10-10T10:36:00.000-04:00I left you a message on the VACTERL network- I hop...I left you a message on the VACTERL network- I hope you will stay with that group if it meets your needs. We learn so much on there regarding the numberous dx that Benji has. Lori<BR/>www.caringbridge.org/visit/benjidennisonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7131658417200450911.post-69185385876868682742008-10-10T09:53:00.000-04:002008-10-10T09:53:00.000-04:00I am so very sorry it is Fanconi Anemia. We are k...I am so very sorry it is Fanconi Anemia. We are keeping you all in our thoughts and prayers.Anonymousnoreply@blogger.com